Talking about endometriosis means putting a silent disease on the table. There are hidden aspects of its social unawareness. This is where its terms and ideas are confused. This is also where myths and stereotypes are used and abused.
Endometriosis isn’t a simple painful menstruation. This is an inflammatory disease that develops in the endometrial tissue outside of the uterus.
These clusters of tissue can show up in the peritoneum, ovaries, intestines, and even the vagina. Also, there are cases of it reaching organs like such as the lungs.
Women who live with this disease know that it’s not easy to fight this medical condition. And, there are many things that are still unknown about it.
Contraceptive treatment can help to slow or regulate endometriosis.
However, in many cases, there aren’t any treatments besides complex surgeries and treatments that confront this attack from someone’s own immune system against the growth of this abnormal and painful tissue.
As a result, it’s necessary that there’s a better social understanding about this disease. This way, there can be a better economic, sanitary, and assistance investment.
We can’t forget that many women are obliged to ask for constant breaks in their jobs. And they need distinct support to have a good quality of life.
In this article, we want to show you nine things that everyone should know about endometriosis. This means both men and women.
1. Endometriosis isn’t easy to diagnose
There are many women who go through a journey of visits to doctors and Gynecologists without knowing the reason for their pain. They don’t find out the reason they are sick, have excessive bleeding, abnormal cycles, or even infertility.
- These symptoms can start with the first menstruations in adolescence.
- The only ways to diagnose endometriosis is with a pelvic laparoscopy or a transvaginal echography.
2. Very different symptoms
Endometriosis isn’t only characterized by painful menstrual periods or infertility. Other associated symptoms are:
- Painful ovulation
- Pain during or after sex
- Abnormal bleeding
- Chronic pelvic pain
3. No, endometriosis isn’t synonymous with infertility
This is important information for women who just received their endometriosis diagnosis.
Suffering from this disease doesn’t mean that you don’t have the ability to be a mother.
Among 30% and 40% of women with endometriosis won’t be able to have children naturally But, with modern reproduction assistance, there are is a greater likelihood of getting pregnant.
4. One in ten women suffers from endometriosis
The Endometriosis Association gives us a lot of information about this disease that affects one in ten women.
They know that this is a chronic disease with unknown causes. They have been able to show, for instance, that there is a genetic predisposition.
Among the things that can trigger the appearance of endometriosis, there are the following characteristics:
- Premature first menstruation
- Regular, but short menstrual cycles (less than 27 days)
- Periods that last more than a week
- Late menopause
5. Is this an inflammatory disease or an autoimmune disease?
Endometriosis is an inflammatory disease that affects your immune system. But even so, doctors say that this isn’t an autoimmune disease.
6. Not all women live the same way
Endometriosis affects each woman in a different way. In the first place, this means that one treatment won’t work equally for all patients.
There are women who don’t have too many day to day problems. On the other hand, others need a catheter to urinate without pain. Others need to use crutches because they can barely walk…
7. Hormonal treatments, but they aren’t a treatment in every case.
Endometriosis needs estrogen to be present for it to be triggered. This causes the abnormal growth of this tissue.
Hormonal treatments slow or stop the production of estrogen. As a result, they help. As a result, oral contraceptive pills are the most used treatment.
8. Endometriosis intensifies if you have a sedentary lifestyle.
If you’ve been diagnosed with this disease, you need to avoid being sedentary.
We know that when you suffer from chronic pain, it’s very hard to leave the house, go to the gym, or take a walk… However, they symptoms intensify if you don’t move.
9. The lack of understanding from those around you also hurt
“You’re always missing work, you have so many excuses”, “You’re always complaining, it’s like you’re a glass doll, everything hurts”, “you’re weak, always tired, I don’t know why you have such a defeatist mentality.”
- These are usually the most common comments that women who suffer from endometriosis hear from those around them.
- Sometimes, they get overwhelmed with relationship issues and the pain that some feel during sex.
- So, we’re looking at a very complex disease with physical limitations and pain. The women with it also have to deal with social problems and the lack of understanding of, or rejection from others.
This disease needs to have better visibility. It needs better understanding, and above all, respect, sensitivity, and a good psycho-social support. This way, this disease won’t be associated with solitude and rejection.